If it isn't pink, what's the point?
My Buggy!
Saturday, July 4, 2009
Fourth of July
Second 4th of July with LB and FIRST one with Luke. How amazing! We had a great day with the kids, of course in the pool most of the day. Thanks be to God for the two most amazing children that we were lucky enough to be blessed with. Tomorrow we are looking for palm trees for the back yard landscape and hopefully getting some rest. Happy 4th!
Thursday, July 2, 2009
Frazzled for LB
My sister said today on the phone that I sounded different. Well, I do. For the first time since we have been foster parents I can't take my poor daughter's pain any longer. When we first got her I could watch the IV's and the tests and the grueling botox injections in her hands and legs... after this week I can take it no longer.
Monday the temporary Nurse "accidentally put her meds into her balloon port. Really? The balloon obviously exploded and we had to put a new Mickey button in. I checked it for residual like always, checked the balloon, added 5 cc's of saline and went on about the day. The next morning I found her awake and in bed as usual with her feeding line AND MICKEY button next to her in bed. A chill went over my body thinking first of how long it had been out. I couldn't get anything back into the stoma!
The trip to the ER was frantic and seemed like I'd never get there. By 2 pm they had finally gotten a 6 Foley in place of the 14 French. By Wednesday the Foley was clogged and then we were on our way to Cook's for another Mickey placement in General Surgery. I thought when they mentioned surgery they meant they'd give her drugs before they shoved that button in again. NOPE! I couldn't believe it. They expanded that hole from a 6 to a 14 and put a new Mini button in.
This morning, the new nurse, the one that we really like... she was feeding Selena and hooking her up to the line and somehow Selena's spasticity kicked in. The nurse had a hold of the button and Selena didn't sit still and yep, you guessed it, the button came out! Sheer terror was on my face I am sure. I couldn't believe it happened! Thanks to the Nurse, she calmly placed another new Mickey into her stoma and we got LB calmed down. Good God, I can't handle it.
This poor child has been through SOOOOOO much already, I ache for her when she has to go through anymore. Please God, spare her from anymore pain and just let her have a happy pain free life from now on. I am certain that Selena is a Saint sent from heaven to show us how strong she is. A pure miracle to even be on this Earth and doing so well at that. I don't know what I did to deserve even the honor of adopting her but I am sure she will never know how much we love her.
On a happier note, I went shopping with Neece this morning and just happen to fall upon a step stool for Luke for the bathroom. It is perfect! Two steps painted light blue with a dragon fly on the first step and a lady bug on the botton step. I think Uncle Christian will have to paint thier names on it.
Looking forward to a very uneventful and healthy holiday weekend!
Monday the temporary Nurse "accidentally put her meds into her balloon port. Really? The balloon obviously exploded and we had to put a new Mickey button in. I checked it for residual like always, checked the balloon, added 5 cc's of saline and went on about the day. The next morning I found her awake and in bed as usual with her feeding line AND MICKEY button next to her in bed. A chill went over my body thinking first of how long it had been out. I couldn't get anything back into the stoma!
The trip to the ER was frantic and seemed like I'd never get there. By 2 pm they had finally gotten a 6 Foley in place of the 14 French. By Wednesday the Foley was clogged and then we were on our way to Cook's for another Mickey placement in General Surgery. I thought when they mentioned surgery they meant they'd give her drugs before they shoved that button in again. NOPE! I couldn't believe it. They expanded that hole from a 6 to a 14 and put a new Mini button in.
This morning, the new nurse, the one that we really like... she was feeding Selena and hooking her up to the line and somehow Selena's spasticity kicked in. The nurse had a hold of the button and Selena didn't sit still and yep, you guessed it, the button came out! Sheer terror was on my face I am sure. I couldn't believe it happened! Thanks to the Nurse, she calmly placed another new Mickey into her stoma and we got LB calmed down. Good God, I can't handle it.
This poor child has been through SOOOOOO much already, I ache for her when she has to go through anymore. Please God, spare her from anymore pain and just let her have a happy pain free life from now on. I am certain that Selena is a Saint sent from heaven to show us how strong she is. A pure miracle to even be on this Earth and doing so well at that. I don't know what I did to deserve even the honor of adopting her but I am sure she will never know how much we love her.
On a happier note, I went shopping with Neece this morning and just happen to fall upon a step stool for Luke for the bathroom. It is perfect! Two steps painted light blue with a dragon fly on the first step and a lady bug on the botton step. I think Uncle Christian will have to paint thier names on it.
Looking forward to a very uneventful and healthy holiday weekend!
Tuesday, June 30, 2009
Must make time to blog more
Oh Tuesday! How I love thee so!
I haven't posted in a LONG time. Busy life w/ two busy kiddos. Luka is off off and away crawling and trying to walk and LB is busy in her new positioning chair with drama queen issues. Pretty normal around here although we did put a pool in this summer and we are starting to swim this week. Selena loves the water and cries each time we get out. Luke is a water boy just like Daddy. Looks like we will be on the boat alot as Luke get's older!
I haven't posted in a LONG time. Busy life w/ two busy kiddos. Luka is off off and away crawling and trying to walk and LB is busy in her new positioning chair with drama queen issues. Pretty normal around here although we did put a pool in this summer and we are starting to swim this week. Selena loves the water and cries each time we get out. Luke is a water boy just like Daddy. Looks like we will be on the boat alot as Luke get's older!
Wednesday, January 28, 2009
Terradactyl's are back!
I never knew what a Terradactyl sounded like until recently Luke is making dinosaur noises. Selena just sits and looks at him like what in the world is that? I think I hear it so much now, it sometimes goes mute in the background from Selena crying or the phone ringing but it is a sound like no other.
That is what I love about staying home with the kids, I hear every noise and know what each of them mean. I know that if Selena never talks, I know every cry and every moan... of course we all know what she wants when she babbles da da da da da... ugh, kills me the love that da da and she have. They are a mess. I guess the Terradactyl and I will have to be second fiddle until she can say Lu Lu or Ma Ma.
That is what I love about staying home with the kids, I hear every noise and know what each of them mean. I know that if Selena never talks, I know every cry and every moan... of course we all know what she wants when she babbles da da da da da... ugh, kills me the love that da da and she have. They are a mess. I guess the Terradactyl and I will have to be second fiddle until she can say Lu Lu or Ma Ma.
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