http://mypersonalpaparazzi.com/selena
Some of Selena's adoption photos-love Cariana and Steve
If it isn't pink, what's the point?
My Buggy!
Tuesday, December 7, 2010
Wednesday, July 7, 2010
Galveston Part II
Leaving at 2 am for an 8 am appt. w/ Dr. Yngve, taking the whole family this time. Daddy and I will switch off driving so that we won't be so tired. Alot has happened since I posted last. I knew I wouldn't blog everyday but at least I got the blogsite started. :)
Snacks packed, size 5 and 6 diapers, a million wipes, snacks, feeding bags, juice, syringes, meds, extra clothes, chuck pads, blankies, 5 different varieties of ELMO (yes, 5) DVD, batteries for every toy, 20 toys at least, fruit snacks for bribery and LB's Hulk hand. I think I got it all. It sure seems like so many things just for one day on the road. I guess more is better with kiddos.
We had to completely cover the thumb and the pointer finger of Lena's wrist splint in hot glue so that she can't bite her hand. She amazingly has bitten a hole in the thumb and a hole in the pointer plus it looks like a tiny Pit Bull has attacked it in various places. She is something else, dramatic! MDCP RN came by yesterday and reviewed our hours for nursing care. We will find out if we have gotten them reduced or not in a couple of weeks. I would assume since she has not had any medical changes in the past year that the hours would stay the same but who knows with all the new changes in Healthcare. I don't even want to get started on the subject of Healthcare for these kids. By the way, we still cannot get her incontinence supplies covered... Children's Hospital's Foster Care Dr. said that there is no ICD 9 code for Spastic Quadraplegia on her listing for Star Health (Foster care insurance) so, she cannot sign that LB needs the diapers etc... HELLO? Are you kidding me? I have called the caseworkers for CPS, StarHealth and various other entities that are involved and have come up w/ "Bruce" telling me to make a complaint with the Insurance company. Oh boy. Will update soon as more info comes available.
We lost a very dear friend, Molly Hill age 1. I am heartbroken and sad that she leaves behind so many loving friends (and her dear family) that she had touched in the short life she shared with us. In the same breath, I am happy for her that she is running, jumping, skipping, rolling in the grass, licking lollipops and eating everything in sight in perfect health, completely whole with her creator.
Snacks packed, size 5 and 6 diapers, a million wipes, snacks, feeding bags, juice, syringes, meds, extra clothes, chuck pads, blankies, 5 different varieties of ELMO (yes, 5) DVD, batteries for every toy, 20 toys at least, fruit snacks for bribery and LB's Hulk hand. I think I got it all. It sure seems like so many things just for one day on the road. I guess more is better with kiddos.
We had to completely cover the thumb and the pointer finger of Lena's wrist splint in hot glue so that she can't bite her hand. She amazingly has bitten a hole in the thumb and a hole in the pointer plus it looks like a tiny Pit Bull has attacked it in various places. She is something else, dramatic! MDCP RN came by yesterday and reviewed our hours for nursing care. We will find out if we have gotten them reduced or not in a couple of weeks. I would assume since she has not had any medical changes in the past year that the hours would stay the same but who knows with all the new changes in Healthcare. I don't even want to get started on the subject of Healthcare for these kids. By the way, we still cannot get her incontinence supplies covered... Children's Hospital's Foster Care Dr. said that there is no ICD 9 code for Spastic Quadraplegia on her listing for Star Health (Foster care insurance) so, she cannot sign that LB needs the diapers etc... HELLO? Are you kidding me? I have called the caseworkers for CPS, StarHealth and various other entities that are involved and have come up w/ "Bruce" telling me to make a complaint with the Insurance company. Oh boy. Will update soon as more info comes available.
We lost a very dear friend, Molly Hill age 1. I am heartbroken and sad that she leaves behind so many loving friends (and her dear family) that she had touched in the short life she shared with us. In the same breath, I am happy for her that she is running, jumping, skipping, rolling in the grass, licking lollipops and eating everything in sight in perfect health, completely whole with her creator.
Tuesday, May 11, 2010
My new seeds
LB is off to school this morning in her cute little circle dots tutu w/ matching shirt and bow. Of course, I had to wrap her leg casts in pink today so that they'd match and paint her toes. Lindsay wants her to go to school without a Nurse, which I am contemplating at the moment. It seems that she spends a large amount of her time with LB during the day anyways and the Nurse just may end up being a distraction for LB to bond with L. I get that, I just need to see how it goes for a couple of days.
No appts today, which is nice. Luke and I will probably cuddle on the couch for a bit until I have to start unloading the washer and house junk. Luke is really good about getting the mop or broom and helping. HE doesn't know this but he will soon be groomed to clean the pool for me. HA! HE is such a great helper. Last night he wanted in LB's bed with her while I was putting her to sleep. He laid there with her and rubbed her belly and then would out of nowhere swat at her like siblings do. He was rather upset when I put him in his own bed not understanding that sissy can give him a concussion in the middle of the night w/ those casts on!
I planted my Sweet Williams, Phlox and Snow in Summers and Luke and I are waiting for them to sprout so that we can plant them in the ground. He is my son, he loves the yard! I hear something being thrown across his room... ode to the next posting session!
I am excited for a great day, lots of rain and my son calling everything in the house "ELLLLMO"!
Thanks God for the beautiful day!
Wednesday, May 5, 2010
Super Moms!
1) Because we never thought that "doing it all" would mean doing this much. But we do do it all -- and then some.
2) Because we've discovered patience we never knew we had.
3) Because we are willing to do something 10 times, 100 times or 1,000 times if that's what it takes for our kids to learn something new.
4) Because we have heard doctors tell us the worst, and we've refused to believe them. Take THAT, naysaying doctors of the world!
5) Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6) Because we gracefully handle the stares, the comments, the rude remarks. (Well, mostly gracefully.)
7) Because we manage to get ourselves together and get out the door looking pretty damn good. Heck, we even make sweatpants look good!
8) Because we are strong. Man, are we strong. Who knew we could be this strong?
9) Because we aren't just moms, wives, cooks, cleaners, chauffeurs and women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches and cheerleaders. Whew!
10) Because we work overtime every single day.
11) Because we also worry overtime, but we work it through. Or we eat chocolate or Pirate's Booty or gourmet cheese (which aren't reimbursable by insurance as mental-health necessities, but should be).
12) Because we are more selfless than other moms. Our kids need us more.
13) Because we give our kids with special needs endless love, and then we still have so much love left for our other kids, our husbands, our families. And our hairstylists, of course.
14) Because we inspire one another in this crazy blogosphere every single day.
15) Because we understand our kids better than anyone else -- even if they can't talk; even if they can't gesture; even if they can't look us in the eye. We know. We just know.
16) Because we never stop pushing for our kids.
17) Because we never stop hoping for them, either.
18) Because just when it seems like things are going OK, they're suddenly not OK, but we deal. Somehow, we always deal -- even when it seems like our heads or hearts might explode.
19) Because when we look at our kids, we just see great kids -- not kids with cerebral palsy/autism/Down syndrome/developmental delays/whatever.
20) Because ... well, alot of family and friends have "fallen off the boat" since we have made this venture but we throw some of them life vests and hope the others can swim really fast!
Read more: http://www.momlogic.com/2010/05/top_20_reasons_moms_of_kids_with_special_needs_rock.php#ixzz0n6yhvj00
2) Because we've discovered patience we never knew we had.
3) Because we are willing to do something 10 times, 100 times or 1,000 times if that's what it takes for our kids to learn something new.
4) Because we have heard doctors tell us the worst, and we've refused to believe them. Take THAT, naysaying doctors of the world!
5) Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6) Because we gracefully handle the stares, the comments, the rude remarks. (Well, mostly gracefully.)
7) Because we manage to get ourselves together and get out the door looking pretty damn good. Heck, we even make sweatpants look good!
8) Because we are strong. Man, are we strong. Who knew we could be this strong?
9) Because we aren't just moms, wives, cooks, cleaners, chauffeurs and women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches and cheerleaders. Whew!
10) Because we work overtime every single day.
11) Because we also worry overtime, but we work it through. Or we eat chocolate or Pirate's Booty or gourmet cheese (which aren't reimbursable by insurance as mental-health necessities, but should be).
12) Because we are more selfless than other moms. Our kids need us more.
13) Because we give our kids with special needs endless love, and then we still have so much love left for our other kids, our husbands, our families. And our hairstylists, of course.
14) Because we inspire one another in this crazy blogosphere every single day.
15) Because we understand our kids better than anyone else -- even if they can't talk; even if they can't gesture; even if they can't look us in the eye. We know. We just know.
16) Because we never stop pushing for our kids.
17) Because we never stop hoping for them, either.
18) Because just when it seems like things are going OK, they're suddenly not OK, but we deal. Somehow, we always deal -- even when it seems like our heads or hearts might explode.
19) Because when we look at our kids, we just see great kids -- not kids with cerebral palsy/autism/Down syndrome/developmental delays/whatever.
20) Because ... well, alot of family and friends have "fallen off the boat" since we have made this venture but we throw some of them life vests and hope the others can swim really fast!
Read more: http://www.momlogic.com/2010/05/top_20_reasons_moms_of_kids_with_special_needs_rock.php#ixzz0n6yhvj00
Wednesday, April 21, 2010
He hears me, the seed was planted long ago...
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I Know that He Can Hear Me
YOU... are not forgotten.
You have not been overlooked.
You have not been passed by, around or pushed aside.
You may be dizzy and weak, but I am with you.
Did you hear me? -- I am ALWAYS with you!
YOUR... needs are on My mind.
Your desires are a sweet song to My ears.
Your every dream flows from seeds I planted Myself.
Seeds I planted long, long ago.
Trust Me.
Look to Me. Seek Me.
Don't take your eyes off of Me.
SEE...
I have placed you on the right path!
I have set your pace!
I have cleared the way!
I have plans for you... You know I do.
My fingerprints are everywhere... I know you've seen 'em.
I am working all things for YOUR good.... I am!
Trust Me with your whole heart
In your weakness, I am strong
Trust Me.
Seek Me.
I am with you... I AM
Monday, April 19, 2010
Caring Bridge
Monday, April 12, 2010 10:17 PM, CDT
Since we are new to Caring Bridge... here is the lastest update to LB's journey with CP.
LB is starting Early Childhood Active Learning School in two weeks! I can hardly believe that she is going to be 3 this soon. It seems like yesterday the CPS caseworker was dropping her off and how tiny she was back then. Fortunately, she has been very healthy lately with no real hospital stays to mention. A couple of high fevers and viruses have landed us an overnight stay at the luxurious Children's Hospital of Dallas.
We are scheduled for PERCS surgery in Galveston UTMB Southwestern this Friday. I will be driving down with the Drama Queen early Thursday morning (3AM) to make our 11AM evaluation appt. From there we are scheduled for surgery on Friday and then if all goes well we can come home on Saturday. Luke and Daddy will stay home and guard the house since our Labrador Nikki doesn't do that too well. Here is the website to read about the actual PERCS proceedure. http://www.utmb.edu/ortho/clinical/faculty/percs_faq.htm
Our hopes are that she will be able to use her right leg more to aid her in walking. By the way, we finally got approved through Medicaid for a Gait Trainer called the KID Walk! It is Raspberry Pink of course and custom to fit LB specifically. After the surgery LB will be in leg casts (pink) I am sure, for 4-6 weeks. So, we are looking forward to a Summer full of Luke dragging LB in her Kid Walk while she tries her darndess to left, right, left, right behind him... :)
I don't question that the Lord sent this child to me for a reason. I know that she will do just fine in the surgery and have no real medical fears for what is coming our way this week. I DO however fear her dramatic attitude in a long car ride with no Elmo playing for 6 hours. God be with Mommy to endure the screaming!
Tuesday, we meet her new CPS caseworker and Wednesday her wonderful Nurse, Kathy will pack up all her things and then we leave! Will keep everyone updated and keep pictures coming. Pray for our safe drive to Galveston and for a very easy surgery with little to no pain.
Since we are new to Caring Bridge... here is the lastest update to LB's journey with CP.
LB is starting Early Childhood Active Learning School in two weeks! I can hardly believe that she is going to be 3 this soon. It seems like yesterday the CPS caseworker was dropping her off and how tiny she was back then. Fortunately, she has been very healthy lately with no real hospital stays to mention. A couple of high fevers and viruses have landed us an overnight stay at the luxurious Children's Hospital of Dallas.
We are scheduled for PERCS surgery in Galveston UTMB Southwestern this Friday. I will be driving down with the Drama Queen early Thursday morning (3AM) to make our 11AM evaluation appt. From there we are scheduled for surgery on Friday and then if all goes well we can come home on Saturday. Luke and Daddy will stay home and guard the house since our Labrador Nikki doesn't do that too well. Here is the website to read about the actual PERCS proceedure. http://www.utmb.edu/ortho/clinical/faculty/percs_faq.htm
Our hopes are that she will be able to use her right leg more to aid her in walking. By the way, we finally got approved through Medicaid for a Gait Trainer called the KID Walk! It is Raspberry Pink of course and custom to fit LB specifically. After the surgery LB will be in leg casts (pink) I am sure, for 4-6 weeks. So, we are looking forward to a Summer full of Luke dragging LB in her Kid Walk while she tries her darndess to left, right, left, right behind him... :)
I don't question that the Lord sent this child to me for a reason. I know that she will do just fine in the surgery and have no real medical fears for what is coming our way this week. I DO however fear her dramatic attitude in a long car ride with no Elmo playing for 6 hours. God be with Mommy to endure the screaming!
Tuesday, we meet her new CPS caseworker and Wednesday her wonderful Nurse, Kathy will pack up all her things and then we leave! Will keep everyone updated and keep pictures coming. Pray for our safe drive to Galveston and for a very easy surgery with little to no pain.
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